Saturday, January 21, 2012

Seeing the Report!

Thursday, I got to see the official report from the Geneticist for the first time. It verifies that all the general genetics test came back normal. It lists the physical findings that support a possible diagnosis of an FASD and lists confirmation of known maternal drinking during pregnancy. It stops just short of an official diagnosis of FAS/ARND. Largely because they are still waiting on the documentation from the Endocrinologist. I have a call into the Geneticist's Office to see what steps are next. We know that they will include a pediatric Dietitian, another visit to the Endocrinologist, a Pediatric Behavioral Specialist, another visit to the Geneticist, and continuation of our Occupational Therapy sessions. What other recommendation they have will be discussed when they return the call - hopefully on Monday. Each day is a new adventure! Some more exciting than others! :)

Monday, January 16, 2012

Two Minutes!!!

Two minutes - that's all it takes to go from neat and tidy to absolute chaos. From being able to see the floor to no where that you can stand with out stepping on something.

Now some of you may think this is pretty normal for a kids bedroom- and for many kids it is (think my twelve year old). But for Kennan a messy room is not. Given his sensory issues it is imperative that we keep is room clean and orderly. This kind of chaos is beyond what his senses can tolerate and we work with him to keep his room relatively clutter free. But in the middle of meltdown mode all bets are off. And that is exactly what happened today. I would not let him do something he wanted and he caved. Toy bucket and toys launched. Clothes from the drawers and the closet flung in every direction until the floor was covered and last but not least blanket, sheet and pillows yanked from the bed. And believe it or not this was minor compared to some of his rampages. As I said - two minutes - just two minutes is all it takes.

Monday, January 9, 2012

Hyper - Drive

Kennan kicked it into hyper-drive all day yesterday. Church was a real struggle. He was hyper focused on the fact that his vest had been inadvertently left at home. We explained that we could get the vest for him after our main worship services. But to no avail. He honed in on that vest and wouldn't let it drop. And just for entertainments sake he has added a new weapon to his arsenal -spitting. How pleasant is that? There are nice calm ways to stop things like hitting, kicking, pinching etc. But , I have yet to find a really effective way to deter him when he starts spitting.  But some how we survived it. He was however still in over drive when we got home. Rocketing around the house full speed, screaming at the top of his lungs, completely unable to sit still. The plus to all this is he crashed at 9:15 instead of his usual 10:30 or 11:00. :) Oh, happy days and blessed peace!!! :)

Wednesday, January 4, 2012

New Pages

Many of you have wondered about the different diagnoses that Kennan has been given. What are they and how do they relate. I have created several new pages: the links to each of these pages are listed at the top of the blog under Kennan's picture. If you click on each of the links you can read more about ARND; ADHD; ODD; SPD/SID; DBD; and CD. These disorders can occur individually or be co morbid(coexist) with other disorders. Many children with FASD have been diagnosed with one or more of these: either in error or because they are co morbid with the FASD. There are a number of other disorders that these children can also have. I have selected the ones that relate to Kennan.